Tracey Ellen Maria
Born in Dublin Ireland in 1988, Tracey Ellen Maria was a healthy and able-bodied child, who upon birth showed no indications of ever having anything other than a ‘normal’ life. However, when she was 8 years old her life took a massive turn when she was diagnosed with a disability known as Rapid On-Set Muscular Dystonia. This disability rocked both the lives of Tracey and her family as they came to terms with the sudden reality of their situation.
After spending years retraining to feed herself, wash herself and even dress herself after Dystonia stole her ability to do all of these things, Tracey is now a 31 year old woman. Although she has experienced many moments of negativity, social isolation and self pity, she has also however experienced positive moments and is now actively involved in a large network of people who all share the same goal as Tracey. That goal is to make all of their own lives and everyone who they meet, more meaningful and positive.
Tracey Ellen Maria is a Two Time Best Selling Author, International Motivational Speaker, Life Coach, Disabled Advocate and Ambassador for the Aunua Academy.
“I enjoying making the most of life, and creating wonderful memories along the way. I am very open to new experiences. I love travelling the world, exploring different cultures, and meeting new people. I am very driven, determined, open minded and I love nothing more than having a good laugh.” – Tracey Ellen Maria
Dystonia is a neurological movement disorder characterised by persistent or intermittent muscle contractions, which force certain parts of the body into abnormal sometimes painful, often repetitive, movements, postures, or both. The movements are usually patterned and twisting, and may resemble a tremor. Dystonia is often initiated or worsened by voluntary movements, and symptoms may “overflow” into adjacent muscles.
Dystonia is classified by:
1. Clinical Characteristics (including age of onset, body distribution, nature of the symptoms, and associated features such as additional movement disorders or neurological symptoms).
2. Cause (which includes changes or damage to the nervous system and inheritance). Doctors use these classifications to guide diagnosis and treatment.
Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal chords. It is a complex order because of its causes, treatment, progression, and variability of symptoms.
There are multiple forms of dystonia, and dozens of diseases and conditions may include dystonia as a symptom. Dystonia may affect a single body area or be generalised throughout multiple muscle groups. It may result from a hereditary condition or as a result of brain injury.
Dystonia affects men, women, and children of all ages and backgrounds. It is the third most common movement disorder after Parkinson’s disease and tremor affecting an estimated 3,000 people in Ireland. Dystonia causes varying degrees of disability and pain, from mild to severe. There is not yet a cure, but multiple treatment options exist and scientists around the world are actively pursuing research toward new therapies.
More information can be found at the Dystonia Ireland website.